Pittwater Rotary Northern Beaches Spring Concert
HeartKids Family Cricket Picnic
Orange Tiny Tickers Ball
Spring Garden Tour
Click the link below to book tickets via our secure online ticket booking system. VISA and Mastercard only.
Entertainment Book
Identikid
Soy Candles HeartKids fundraiser
Family Camp 2011
Heart Conditions - Detailed information for parents
Cuppa for HeartKids
Please visit the following website http://www.cuppaforkids.org.au to register and learn more about this program. On the site you will find all sorts of resources along with numerous celebrities who have endorsed the campaign and provided their favourite recipe for you to taste. Dilmah Tea has kindly donated the tea for the registration packs.
Blackmores Runing Festival 2011
Blackmore’s Sydney Running Festival – Sunday 19th September
HeartKids NSW is a charity partner in this event. There are several options available – 4KLM Family Fun Run, 9KLM Bridge Run, 21.09KLM Half Marathon and 42.19KLM Marathon. You can register at http://www.sydneyrunningfestival.com.au . Once you have registered you can elect to fundraise for HeartKids NSW http://www.gofundraise.com.au to set up your own page or we have set up a team page which you can join
Read all about Kids Heart Research DNA Bank
Kids Heart Research DNA Bank. An initiative to help understand the cause of congenital heart disease.
A Tribute to Dr Graham Nunn
In March 2008 Dr Nunn left to take up a new position as Head of Paediatric and Congenital Cardiac surgery for Queensland in Brisbane. He leaves behind many member families, not just patients, but friends. This space is your opportunity to say THANK YOU Dr Nunn. Typical of the response to his departure is that from heart mum, and HeartKids FSC, Kim Mackie – “As Family Support Coordinator at Westmead I see Graham regularly, speaking to families before and after surgery, in PICU and passing in the corridors. He always made time to explain things over and over for shell shocked parents, speaking in his quiet tone of voice making what he did for their child seem effortless.
As the heart mum of Liam who turns 18 on 29/3/08, I say THANK YOU to Graham. We met him the day of Liam’s 1st surgery aged 11 days. Graham went on to operate on Liam 4 more times over the next 16 years, culminating just 22 months ago with the last surgery Graham would do on Liam, as at 18 he is no longer a child and will have to transition into the adult world.
From a personal point of view without Dr Graham Nunn we would not have a son, and for his skill, expertise, caring, and dedication we say again….thank you. I know many families were greatly saddened by the news that he was leaving for Brisbane and I am sure that everyone in the HeartKids family would wish Graham and his family all the very best for the new challenges that lie ahead.
Our loss is Queenslands gain, they’re very lucky to have him.
Kim Mackie
Family Support Coordinator.
Latest HeartKids Australia news
HeartKids Australia News
HeartKids_Australia_News_Summer_09.doc
Annual CHD Awareness Month
HeartKids has its annual CHD Awareness Month in February 2010
Please help by making a donation
Ordering a donation tin
Holding a fundraising event
Purchasing some merchandise
HeartKids Events
Regular Events:
Westmead Children’s Hospital – Coffee Mornings
1st Tuesday and 3rd Thursday each month.
Please contact Kim on 0406 420 627 or 9294 0800 for further details.
Sydney Children’s Hospital Randwick – Coffee Morning
If you would like to attend a coffee morning at the Sydney Children’s
Hospital Randwick please contact Karen on 0406 424 620 or 9294 0800.
HeartKids newsletters
HeartKids News – Autumn 2010
HeartKids News – Summer 2010
HeartKids_News_Summer_2010.pdf
HeartKids News – Spring 2009
>HK_Spring2009_LoRes_Single_pages_(2).pdf
HeartKids News – Winter 2009
HeartKids News – Autumn 2009
HK_Autumn2009_Lores_single.pdf
HeartKids News – Summer 2008
HeartKids News – Spring 2008
HK_Spring2008_LOWRES_singlepg.pdf
HeartKids News – Winter 2008
HEA409-HeartkidsNews_WINTER_V7.pdf
HeartKids News – Autumn 2008
HEA408-HeartkidsNews_Autumn_V8.pdf
HeartKids News – Summer 2007
HEA406-HeartkidsNews_SUMMER.pdf
HeartKids News – Spring 2007
HEA404-HeartkidsNews_Spring.pdf
HeartKids News – Autumn 2007
HEA402-HeartkidsNews_autumn.pdf
HeartKids News – Winter 2007
HeartkidsNews-Winter1.pdfHK_Spring2009_LoRes_Single_pages_(2).pdf
List of Achievements of HeartKids NSW
Over the years, HeartKids NSW, with the help of members, sponsors and friends, has been able to help out the children’s hospitals in NSW by way of donations of money, equipment and research grants.
Support Service
We have an established history of familial/emotional care, support and understanding for families going through the trauma of having a child with Childhood Heart Disease (CHD).
We offer practical assistance for families, while they are in hospital, this includes for eg: phone cards, parking assistance, hospital packs, food vouchers, coffee mornings, and reimbursement of small expenses incurred while staying in hospital.
We provide information services eg brochures on hospital care, resource library, website, newsletter, experienced parents available to talk to other families about their experiences.
We employ dedicated, caring, and family support workers at both major children’s hospitals who coordinate support and care for families in hospital and in times of need.
We work closely with Medical and Para-medical staff at both Children’s hospitals to improve understanding of issues/services affecting our families.
We network very closely with the other Heartkids State groups and have been very involved with the formation of our national organisation Heartkids Australia.
We hosted the Heartkids Australia national conference in Sydney this August 2006 at Rydges Hotel North Sydney.
We are working hard to advocate more awareness of Childhood Heart Disease within the corporate community.
We organise social outlets for children and their families, so that children can spend time with other friends like themselves
- Christmas parties
- Movie days etc
- An annual Teen camp for the older children
- Family camp
- Coffee mornings on the ward
We gratefully accept the making of and help with the handing out of handmade quilts by dedicated volunteers for children to brighten up their stay in hospital.
Research Support
We encourage and support research programs aimed at the prevention, detection and management of Childhood Heart Disease. We do this by providing financial donations to established research bodies to support and establish research projects into Congenital Heart Disease.
2004
- $10,000 donation to ANZCHRC (Australia and New Zealand Children’s Heart Research Centre)
- $10,000 donation to Dr Robert Weintraub to be used for Paediatric Heart Transplant Research
- $30,000 donation to Dr David Winlaw / Adolph Basser Cardiac institute to be used for Aquaporins study – surviving cardiopulmonary bypass surgery
2005
- $5,000 donation to Dr David Winlaw / Adolph Basser Cardiac institute
2006
- $20,000 donation to ‘Kids Heart Research’ projects based at the Children’s Hospital Westmead – Dr David Winlaw accepted the cheque on behalf of the Centre.
- $10,000 donation to ANZCHRC
2007 to date
- $20,000 donation to ‘Kids Heart Research’ projects based at the Children’s Hospital Westmead – Dr David Winlaw accepted the cheque on behalf of the Centre.
Equipment and Hospital Support
We purchase essential equipment to help resource our hospitals for the benefit of children’s care. Some of the items that we have purchased include:
2001
- Donation of a Head Camera to Dr Sholler from money raised by the Eastwood Quilters raffle money.
2003
- Donation of a $14,000 Cardiac Stress Test Machine to Children’s Hospital Westmead
- Donation of $6,000 for a fibrillator at the Children’s Hospital Westmead – $20.000 raised by the THROB for Life concert in memory of Daniel Brown.
- $1,000 donation to Grace Ward in the Children’s Hospital Westmead
- $1,000 donation to PICU in the Children’s Hospital Westmead
- $1,000 donation to Edgar Stephens Ward in the Children’s Hospital Westmead
- Donation of Children’s Toys to Edgar Stephens Ward in the Children’s Hospital Westmead
2004
- 2 Neopuff units donated to John Hunter Hospital
- Donation of new children’s wheelchair to C2South ward in Randwick
- 1 set of new Baby Scales was donated to C2South ward in Randwick
- Donation of Paediatric sized Stethoscopes (so that Heart sounds can be heard in isolation to Bowel sounds) to PICU in the Children’s Hospital Westmead
- Donation towards a Neonatal Transport Bed for safe and non disturbed movement of Newborns, to Grace Ward in the Children’s Hospital Westmead
- Donation of $1000 to Edgar Stephens Ward in the Children’s Hospital Westmead towards general purchases
2005
- A Pulse oximeter at John Hunter Hospital
- 8 trolleys for moving Televisions to patients beds were donated to Edgar Stevens Ward at the Children’s Hospital Westmead
- Electric Breast Pumps for the use of Mothers expressing breast milk, was donated to Grace NICU at the Children’s Hospital Westmead
2006
- Cardiac Pacemaker for Paediatric Intensive Care (PICU), Sydney Children’s Hospital
- $2,500 donation to buy a Bayley Scales of Infant & Toddler Development – Third Edition (Bayley III) for the Grace NICU Ward at the Children’s Hospital Westmead,
- Making and donating baby wraps to be used by families on the Edgar Stevens ward and PICU.
- Bought 2 breast pumps to be used on the Edgar Steven’s ward at $1,900.
- November we undertook a 2-day renovation project in partnership with the Vodafone Australia Foundation. The VAF funded the project with an $18,000 grant and provided volunteers to help do the work needed to renovate the 6 rooms at CHW. We updated tired old furniture, put on a new coat of paint, and donated some new comfort items such as microwave, TV set, artwork and fridge for the parent’s room. Nurses, kids, parents are very happy with the new look rooms. A very satisfying project.
- $2,500 donation to buy a Bayley Scales of Infant & Toddler Development – Third Edition (Bayley III) for the Grace NICU Ward at the Children’s Hospital Westmead
- $1,000 to go towards purchasing new high chairs and CD players for Edgar Stevens ward.
- $3,400 to PICU CHW to buy 2x Sims Syringe Drivers.
2007
- $3,000 to CHW to help refund regional families accommodation costs for the night before surgery. Admission now for operations is day only thus country families need to pay for accommodation in Sydney the night before surgery. This is very difficult for some families.
We publish a seasonal “Heartkids News” newsletter to member families, members and health care professionals.
2008
- Family Camp Mowbray Park- HeartKids NSW host a family camp at Farmstay just outside of Sydney. Approx 20 families attend and enjoy the weekend with many activities and the chance to chat to others and share experiences. One dad made the following comment “This is the best time I have had with my family”
- Tiny Tickers ball held at The Sydney Hilton in September is a huge success for HeartKids.
- Reburbish Grace Ward at Childrens Hospital Westmead with assistance of Vodafone volunteers.
- Provide new lounge for parents room at Sydney Childrens Hospital
- Secure a sponsor B.I.C services to provide an emergency care bag for families in hospital.
- HeartKids is successful in obtaining a grant from Perpetual Foundation to fund our Family Support Service. and St George Foundation to provide assistance to families with meal, and petrol vouchers and also emergency accommodation.