Stories

Would you like to see your HeartKid’s story on this page? If so, just write your story up, include some pictures and email it all to the HeartKids email at mail@heartkidsnsw.org.au.

Liam and Riley Woodcock

We honour the treasured memory of Liam and Riley Woodcock. Liam and Riley Woodcock lost their battles with heart disease in 2006 – Riley died in utero and Liam died in hospital approximately 3 weeks after he was born prematurely. Dr Stuart Kirkham has donated $1,000.00 to HeartKids NSW on behalf of the Woodcock boys and their parents Stephen and Claudia Woodcock. We continue the fight on their behalf.

Daniel’s Story

We didn’t know Daniel had a heart condition until after he was born.When Daniel was 3 days old the paediatrician picked up a heart murmur, he said it was nothing to worry about and he probably wouldn’t need medication or surgery.

Marissa’s Story

In the early hours of the 24th of October 2007 our little baby girl Marissa was born at St George Private Hospital. She weighed 2.8 kg the smallest of our three children.

Mitchell’s Story - Part 2

Meet Mitchell, our son. Mitchell, like so many of our ‘Heart Children,’ looks like any other healthy boy. However, looks can be deceiving, as most of us know. Mitchell has the congenital heart defect, Pulmonary Atresia with Ventricular Septal Defect (VSD). Mitchell has come along way in his ten years.

William’s Story

After being together for almost 11 years, Brett & I finally decided to start a family of our own. It didn’t take long before I was pregnant & we were both elated! We had regular visits to the obstetrician & I had a fabulous pregnancy, apart from having gestational diabetes from around 28 weeks into the pregnancy.

Lachlan’s Story

Lachly was diagnosed with problems in utero, was born with major heart and other problems, ventilated at birth and spent 21 days in NICU. He has been diagnosed with Noonan Syndrome and HCM (Hypertrophic Cardiomyopathy). He had open heart surgery in 2006, and has more heart surgery yet to come. So begins the story of his life so far.

Madeline’s Story

Madeline was born on the 16.6.00 and 24 hours after she was born she wasn’t feeding and was very tired. We eventually were transferred to the John Hunter Hospital as Madeline was born in a Private Hospital. It was there that after x-rays were done they noticed her heart wasn’t the normal shape. After discussions with specialists we were heading down to Westmead.

Timothy’s Story

28 month old Timothy Hamilton of Tanilba Bay was born with a congenital heart defect – Fallow’s Tetralogy – which was diagnosed at 10 days, after a heart murmur was detected at 5 days.

Sophia’s Story

Sophia Louise Hart came into this world at 22:25 hrs on 22 July 2005. There was no indication during pregnancy that Sophia would be born with a congenital heart defect.

Elizabeth’s Story

Elizabeth was born on 9th November 2005 with Transposition of the Great Arteries (TGA) and she also has Ventricular Septal Defect (VSD) as well as Pulmonary Atresia. These heart conditions are common however itis a one in a million chance that you would get all three conditions at once.

Haydan’s Story

Haydan has just turned 3 and has Hyperplastic Left Heart Syndrome(HLHS). Haydan loves spiders and all bugs, also is an absolute water baby, loves water and holds his breath for a long time, he also loves most fruit and chocolate.

Kimberley’s Story

Kimberley is ten years old and been through a lot in those ten years. Read how mum Fran tells the story of Kimberley’s birth and subsequent surgeries. A special comment when Kimberley was 10 months is inspiring… ‘ she is a miracle child and she just keeps reminding us from time to time that we have to keep our eye on her’

Tara’s Story

Tara is 14 months old and gave mum, dad and brother Kieran some very sleepless nights to start with. Tara was born with Tetralogy of Fallot and has a condition called Duplex Kidneys. From the sound of mum’s story though, Tara is a great little fighter who wont let anyone hold her down.

Holly’s Story

Holly is 3 and a half, loves the wiggles and Hi-Five. She is the apple of her parents Dawn and Steve’s eye. This is Holly’s story along with her parents who found out when Dawn was 18 weeks pregnant that their baby girl had Transposition of the Greater Arteries.

Rebecca’s Story

Rebecca is fifteen and has Heart Block. Rebecca is in year 11 at high school, loves her horse Kruger and had an interesting trip to and through Europe when she was 9, which gave her mum lots to worry about. Just click on Rebecca’s picture to read about this and the difficulties diagnosing Rebecca’s defect.

Holly’s Story

Holly turns ten in late 2006. Holly has Pulmonary Valve Stenosis. Holly has a twin brother named Trent who also has an innocent murmur and two big sisters, Elli and Mia. Read about Holly’s story written by her mum Lindy. It is a special story and you will enjoy reading it.

Olivia’s Story

Olivia will be five in April 2006. Olivia has Tetralogy of Fallot and Pulmonary Stenosis. There is a wonderful story of Olivia’s first year written by her mother, with some pictures during Olivia’s stays in hospital and some great pictures of her first Christmas and first holiday.

Daniel’s Story

On 21st April, 2002, Daniel Brown, aged seven, went on a picnic with his mum, dad, younger brothers Joel and baby Scott, and family friends the Nicholsons, who have kids around the same age.

Mitchell’s Story

Mitchell turns 10 in 2006. Mitchell has pulmonary atresia with V.S.D. Mitchell and his sister often fight and tease just like siblings do. The year 2002 was Mitchell’s first in big school. Although his mum worried about his first year in kindergarten, Mitchell has come through it like the trooper he is!

Christopher’s Story

We didn’t find out about our son’s heart condition until his first night of life when he suffered a choking episode, which led him to be examined by a Neonatologist who then referred him on to NICU (Neonatal Intensive Care Unit) after he heard a heart murmur.

Charlie’s Story

Our baby boy Charlie was born on 6th January 2007 with transposition of the great arteries (TGA), a congenital heart defect.